Friday, October 1, 2010

Random

This afternoon I got a call from my doctor about the sonogram.

Simon has cysts (Choroid Plexus Cysts..CPC) on his brain. Of course the cyst isn't the issue - that will go away. But the issue is that there is the possibility that it's a soft marker for dwns.syndrome. Of course I'm told not to worry...that it's most likely not going to be anything to be concerned about.

Because my doctor calling and telling me about this tiny little detail is for absolutely no reason. Because the crazy 1% chance would NEVER happen to us.

Now we just get to wait for more sonograms and measurements. I'll ask about getting some blood tests. I don't think we want to risk the amnio. I'd like to know either way though, to prepare if that is our path. But we just get to wait.

And not worry, of course.

22 comments:

  1. No one needs more worry in their lives, especially babyloss moms. I will be thinking of you and Simon and hoping you get answers soon. <3

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  2. Oh geez. Sometimes I wonder why for so many of us the path to parenthood is so difficult. Statistics mean nothing anymore to me as well.

    I am wishing you and Simon well and sending good thoughts your way.

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  3. Sending love and wishing Simon well.

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  4. i' sure its all going to be ok hun, sending you and little simon loads of love xxx

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  5. Thinking of you and Simon . . . am hoping everything is going to be OK. Feel free to borrow my mantra: 'Breathe in, breathe out, repeat."

    I had a bit of an issue throughout the majority of this pregnancy, and what made me feel a bit better was the increased monitoring I received. More sonograms, more blood work. Every time I went in for a sono I was a wreck, and then felt better as I got to see Petit Trois.

    My issue was different from yours, but I hope the thought of "seeing" him more frequently gives you a bit of comfort as it did for me.

    I'm totally not worrying right along with you--much love.

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  6. Our path not easy... our minds tested at every turn.. Hoping that everything is ok with Simon and mom.

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  7. Oh..... the worry. I'll be thinking about you. Are you going to do the NT test? Did you already to that?

    I hope everything is ok and that 1% chance does not turn into 100% for you.

    (((((hugs)))))

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  8. Oh, honey. I went through this with Thor. And we actually opted for the amnio, so if you want to discuss this, let me know. (I will send you my phone number if you want to talk in real life, or we can skype or whatever.) Sending you all much love. It is scary.

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  9. I am thinking and praying for you, Rachel. I wish you could really not worry...but I know that is not possible. ((Hugs to you and baby Simon))

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  10. Oh sweetheart, I'm sorry for this extra worry. I'm thinking of you, and hoping Simon is just worrying his parents for nothing. x

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  11. I am here to not worry with you... every step of the way. xo

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  12. Thinking of you and Simon and hoping everything is just fine. I hope you get some definitive and positive answers soon.

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  13. Thinking of you and hoping everything is just fine. My doctor also found a cyst on the baby's brain and also told me he saw no reason to worry. I go back in a few weeks to see if it has hopefully disappeared. He said cysts like these usually do and I'm hoping he's right. ((((HUGS))))

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  14. Sending love and prayers! Sorry for the extra worry about your little one <3

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  15. Praying for you during this time. Gosh, sorry that you have this extra thing to weigh on your heart.

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  16. Rachel, oh how I wish that you didn't have to have this extra worry. You and sweet Simon take care. thinking of you -

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  17. As if you needed one more thing to worry about. I'm so sorry! Yes, he's most likely just fine but statistics are no comfort to baby-loss mommas. I hope soon get evidence that the worry is unfounded!

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  18. When my friend went in for the level 2 u/s to have her baby's CPCs checked & a more thorough anatomy scan done, they found that the CPCs were gone but Stella had a congenital heart defect that nobody had picked up on.

    Please consider asking your doctor about a fetal echocardiogram as part of your additional sonos. DS and congenital heart defects go together, too.

    I am sorry to add to your worry. I didn't come here to hurt you. I just wanted to share, in the hopes of helping you make the best informed decisions possible.

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  19. Hugs. And of course you're going to worry. A friend of mine had this with her baby and a club foot which are both soft markers - he's over a year old now and absolutely fine. Thinking of you as you decide where to go with additional testing. I had a amino when I was pregnant with Matilda if you've got any questions about the procedure.

    Sending love. xx

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  20. This sucks, you must be so worried...I'm so sorry :(

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  21. thinking of you.
    I can't even imagine what emotional turmoil you are going through.
    how ridiculous of them to say to 'not worry'!
    argh!!!

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  22. Cyst, shmyst. That's what I say.

    Sending much love to all of you - you're in my thoughts more often than you know! xoxo

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